What is Muscular Dystrophy?
Muscular Dystrophy is a neuromuscular, genetic disorder which results in the progressive deterioration of muscle strength and function. Muscular Dystrophy is the name of one of many different neuromuscular conditions.
Neuromuscular conditions can affect people at different stages of their lives and onset of symptoms can occur from birth to adulthood, depending on the condition.
The rate of progression and pattern of inheritance also varies depending on the condition and the individual.
You can learn more at our website.
About Muscular Dystrophy NSW
Muscular Dystrophy NSW is a membership-based not-for-profit organisation supporting and connecting people with neuromuscular conditions (muscular dystrophy) and their families.
For more information about what we do and the services we provide for the muscular dystrophy community see our website mdnsw.org.au.
Here at MDNSW, we are here for our members at each stage of life, including in times of transition when they might not know what to expect next. We maintain a continuity of support, providing information and advice along the way, throughout all life stages.
What makes us different from other providers is that we provide services exclusively for people living with muscular dystrophy or other neuromuscular conditions, allowing us to focus on their specific needs and anticipate future supports.
Camps and Programs
Our camps allow kids with MD to have time outside of the daily challenges of their life in place where they can truly belong. MD camps help build confidence, friendships and independence.
We have a specialist client services team that provide information and advocacy support for our clients. This can include information support and home visits to advocating for NDIS plans or school and clinic visits.
MDNSW has a large focus on being a community. We run programs to encourage social cohesion and strong supports. Including our MD retreat, community day, peer connect meet ups.
We believe in supporting entire family. We host events to support members of the family with much needed respite. This includes a mum’s retreat and sibling days.