What is Muscular Dystrophy?
Muscular Dystrophy is a neuromuscular, genetic disorder which results in the progressive deterioration of muscle strength and function. Muscular Dystrophy is the name of one of many different neuromuscular conditions.
Neuromuscular conditions can affect people at different stages of their lives and onset of symptoms can occur from birth to adulthood, depending on the condition. The rate of progression and pattern of inheritance also varies depending on the condition and the individual.
For more infirmation about what we do and the services we provide for the muscular dystrophy community see out website mdnsw.org.au.
Here at a Muscular Dystrophy NSW, we create a community for people living with a neuromuscular condition and their families; one where they can connect, learn, grow, share, have fun and be treated with respect and equality."
CHARLOTTE SANGSTER
Chief Executive Officer, Muscular Dystrophy NSW
Our Services
Camps and Programs
MDNSW camps allow kids with neuromuscular conditions to have time outside of the daily challenges of their life in place where they can truly belong.
Support Coordination
MDNSW specialist client services team provide support and advocacy services, tailored to the client and carers needs.
Family Support
We believe in supporting entire family. We host events to support family members and caregivers who are need respite.
Peer Connection
MDNSW has a large focus on being a supported and connected community. We run programs to encourage social cohesion and peer support.
