We believe people living with a neuromuscular conditions deserve specialised support, and a community that understands them. We understand that a new diagnosis, or a change in your condition can make you them feel anxious and alone. That’s why for over 60 years, we’ve connected people across NSW living with neuromuscular conditions to the support programs they want, and the community they need.
Muscular Dystrophy refers to a group of 70+ genetic neuromuscular disorders characterised by progressive muscle degeneration and weakness. It is caused by mutations in genes that play a crucial role in the structure and function of muscle fibres.
Neuromuscular conditions can affect people at different stages of their lives and onset of symptoms can occur from birth to adulthood. The severity, onset, and progression of Muscular Dystrophy can vary widely depending on the type of condition, and often results in progressive deterioration of muscle strength and function, loss of mobility, pain, fatigue and more.
Visit our website to learn more.
Here at MDNSW, we are here for our members at each stage of life, including in times of transition when they might not know what to expect next. We maintain a continuity of support, providing information and advice along the way, throughout all stages of life.
What makes us different from other providers is that we provide services exclusively for people living with muscular dystrophy or other neuromuscular conditions, allowing us to focus on their specific needs and anticipate future supports.
Camps Program
MDNSW camps allow kids with neuromuscular conditions to have time outside of the daily challenges of their life in place where they can truly belong.
Support Coordination
MDNSW specialist client services team provide support and advocacy services, tailored to the client and carers needs.
Peer Connection
MDNSW has a large focus on being a supported and connected community. We run programs to encourage social cohesion and peer support.
Family Support
We believe in supporting entire family. We host events to support family members and caregivers who are need respite.
Find Out More
MD Factsheet MDNSW Factsheet MDNSW Website
Read stories straight from the MD community on The Peer Collective to learn more about a range of topics like accessible travel, assistive technology, interesting podcasts and personal anecdotes.
